What people in the Autism Community want you to know.

Posted: April 2, 2015 in Uncategorized

Since, it’s almost World Autism Awareness day I asked members of the Autism community if they could let society know one thing or change one thing what would that be. Here is what some people said.

Individuals with autism want and need the same as anyone else: want to be accepted, want to have paid employment, want to have relationships, want to live independently, want to be respected for who they are, want people to see them – not autism!
Carla Dayholos, mother,

Vice-president of Autism Society of Manitoba.

What I would say for this would be that I would like Neurotypical people to have the option to learn about Asperger’s on a more detailed basis, maybe at the level of a program at a community centre. Racism and discrimination against people chiefly come from a lack of knowledge on the accuser’s part, and something like this would help people have a better understanding of what people with Asperger’s have to deal with on a daily basis.

David Perlmutter  author of America Toons in: A history of Television Animation.

Please know that autism is a spectrum and like a rainbow it’s a long, often complicated journey to the pot of gold, with  each one of us hiking a different path, in a unique way but in the same direction.  Some of us  need a lot more help to get there than others.  However, none  of us, (A.S.D. or not) really arrive at that “pot of gold” unless we realize that “the gold” is actually “the journey” and the opportunity to walk it compassionately with the rest of the travellers.Applying this mindset to our lives would break down walls and create the pathways to arrive compassionately, as one at our destination.

Elaine Pelley
mom to Sarah Erenberg-
A colourful teen, living with A.S.D. on our journey!

I don’t think like you. I know I look a lot like most of you, but I am wired differently. I usually don’t see things the same way you do. I have been taught/trained to be polite, and I try very hard. When you call me rude, or yell at me, I don’t understand and I am hurt, but I just suck it up. I don’t yell at you! Don’t tell me I don’t have a real disability, and that I should just try harder to be your definition of normal. This is not something I can fix!

Annette Dim Witte

What I would want to change is the very common perception that parents of autistic kids are somehow “saints” or “Super Mom/Dad”, that they are uniquely capable of caring for an autistic child or that they should get a medal for raising their kids. We are like any parent and our children are just our children. I have three other kids–each has their own strengths and challenges. On some days, my youngest (who is neurotypical) is MUCH more of a challenge than my autistic son. Parents are parents, and if we’re decent people, then we love all our children, autistic or not.

Alicia Hendley, mother and Author.

If I could change one thing I would create some magic dust to sprinkle on people so that they would “NEVER GIVE UP” in working with individuals with autism. There is ALWAYS one more thing to try, another reinforcement that might work, a new creative idea that may move things along one more step.

Bennetta Benson

Head of OHEY

works with people with Autism

Runs OHEY

Works with people with Autism

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